First Mum

Esi Acey Eghan writes from inside a life shaped by sickle cell anemia. Her memoir follows the years she spent managing the inherited blood disorder, and the expectations she had about becoming a mother, which did not unfold as she had imagined. After the birth of her child, who had complex abnormalities, Esi developed avascular necrosis, a complication that has seriously restricted her day-to-day life.

The book also tells how Esi has faced pain and strain with a remedy she made herself and now depends on. She shares that home-made treatment openly, presenting it alongside her account of illness, caregiving and resilience.

Beyond one woman's story, the memoir is meant to open up conversation about sickle cell anemia and the serious complications it can cause. It will speak to readers living with the condition, their families and anyone who wants to understand it better.